巢湖学院学报 ›› 2020, Vol. 22 ›› Issue (6): 91-97+136.doi: 10.12152/j.issn.1672-2868.2020.06.013

• 信息科学 • 上一篇    下一篇

健康大数据背景下患者隐私保护意识调查及伦理思考

欧阳婷,杨银凤,束建华,等:安徽中医药大学 医药信息工程学院   

  1. 安徽中医药大学 医药信息工程学院,安徽 合肥 230038
  • 收稿日期:2020-07-30 出版日期:2020-11-25 发布日期:2021-02-02
  • 作者简介:欧阳婷(1981—),女,安徽萧县人,安徽中医药大学医药信息工程学院讲师,主要从事医药信息管理研究。
  • 基金资助:
    国家自然科学青年基金项目(项目编号:81904062);安徽省高校人文社会科学重点研究项目(项目编号:SK2018A0218);安徽中医药大学校级人文社科研究项目(项目编号:2019rwyb07);安徽中医药大学自然科学基金重点项目(项目编号:2019zrzd10)

Ethical Thinking on Patients' Awareness of Privacy Protection in the Context of Health Big Data

OUYANG Ting,YANG Yin-feng,SHU Jian-hua,et al:School of Medical Information Engineering, Anhui University of Chinese Medicine   

  1. School of Medical Information Engineering, Anhui University of Chinese Medicine, Hefei Anhui 230038
  • Received:2020-07-30 Online:2020-11-25 Published:2021-02-02

摘要: 健康大数据背景下如何有效保护患者医疗数据安全,减少及杜绝隐私泄露,是当前需要思考及研究的重要问题。通过问卷对安徽省患者隐私保护意识、有无隐私泄露及影响、医疗信息保护意识和措施等方面进行调查,旨在为健康大数据分析、挖掘提供更有针对性的数据共享和隐私保护依据。调查发现患者隐私保护意识整体较高,被调查者在愿意医疗信息共享的同时又对隐私泄露表现了担心,隐私泄露问题时有存在并对当事人造成了影响,被调查者对法律法规的了解、使用、信任度不高。健康大数据背景下患者隐私保护需要政府、个人、各级医疗机构等多方面共同努力。

关键词: 健康大数据, 隐私保护, 意识, 伦理

Abstract: Against the background of health big data, how to effectively protect the safety of patients' medical data and reduce and eliminate privacy leakage is an important issue that needs to be considered and studied at present. This paper investigates patients' awareness of privacy protection, whether there is privacy leakage and impact, awareness and measures of medical information protection in Anhui Province through questionnaires, aiming to provide more targeted data sharing and privacy protection basis for health big data analysis. The survey found that patients have a high awareness of privacy protection, and the respondents are willing to share medical information, but they are worried about privacy leakage. Privacy leakage often exists and has an impact on the relevant parties and the respondents have little understanding, use or trust of related laws and regulations. In the era of health big data, patient privacy protection needs the joint efforts of the government, individuals and medical institutions at all levels.

Key words: health big data, privacy protection, awareness, ethics

中图分类号: 

  • R-012